Saturday, November 7, 2009
Well, today EJ spiked a temp and we had no choice but to march back to Children's. Some blood work, an IV, and two rocephin shots later, we are thankfully home again. I have to admit, our new "normal" is anything but normal. I am adjusting though. Since coming home I am finally letting it all sink in. I have a child with a chronic health condition. He is immune compromised to say the least, he has pancreatic insufficiency and can not absorb any protein or fat , he is vitamin deficient, and very malnutritioned. But, he is here as I type, laying in my lap safe and sound. He is here. For that I will be eternally grateful. EJ is a miracle and has been from the moment he was conceived. We have worked so hard for him from that moment. With a high risk pregnancy and a subsequent NICU stay, he has made an impact for sure!
So as I adjust to the new medicine routine, the temperature taking, the vitamin giving, yeast controlling, calorie giving, feed forcing, love and snuggle giving, and trying to give my worry to the Lord, I am just thankful.
Thank you for all your prayers and support. We do have a long road, but oh how grateful I am for that!